Living with a bleeding disorder is never black and white. And it’s not all blood-red either. Life after diagnosis may start out hard, but we learn by doing, making mistakes, asking questions and surrounding ourselves with people who understand.
Then, slowly, it just becomes life again. Because a bleeding disorder shouldn’t define who we are, what we do or how we feel.
Through our community, we find the freedom, opportunity and fun in life after diagnosis.
What do you need help with today?
My child is newly diagnosed
Finding out that you or your child has a bleeding disorder can be a stressful experience, and we’re here to help you to make sense of it all.
Newly Diagnosed
Someone I know has a bleeding disorder
There are lots of different bleeding disorders. Find out more about the different types of bleeding disorders and the treatment options available.
Diagnosis & Treatment
I need help & support
All you need to know to keep fit and healthy with a bleeding disorder and the support and benefits available to you and your family.
Day-to-day Living
Latest news at the Haemophilia Society
11 Mar 24
Dental care – what’s your experience?
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26 Dec 23
Simon Hamilton, Chair of Haemophilia Northern Ireland
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19 Dec 23
Free place at global bleeding disorders conference – APPLICATIONS CLOSED
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19 Dec 23
Jack’s 30-day running challenge
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Upcoming & recent events at the Haemophilia Society
Youth Ambassador Programme – Recruitment 2024!
Shape. Influence. Grow. The Haemophilia Society youth ambassador programme was created to amplify the voices…
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Wolverhampton 10K
Registration Deadline: 14 March 2024. Join us for the brand new ROAD CLOSED Wolverhampton 10k….
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Leeds Running Festival
Registration Deadline: 11 April 2024. The Leeds Running Festival is back and bigger than ever….
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Colchester Zoo Stampede 10k
Registration Deadline: 19 April 2024. The Colchester Stampede 10k is an event like no other…
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Members Only
Save the Date
Newly Diagnosed Families Weekend 2024
Our newly diagnosed families weekend is a special event designed for families who have received…
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2024 Ford RideLondon-Essex 100
Registration Deadline: 12 April 2024. Get ready to experience the iconic Ford RideLondon-Essex 100, one…
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Great North Swim, 1 Mile
Registration Deadline: 29 May 2024. Distance: 1 Mile (equivalent to 64 lengths of a 25-meter pool)…
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Cheltenham Running Festival, 5K & 10K
Registration Deadline: 6 June 2024. Take this unique opportunity to run a chip-timed 5k or…
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ASICS London 10K
Registration Deadline: 14 June 2024. This iconic event is back, bigger and better than ever….
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Run Aintree, 5K & 10K
Registration Deadline: 10 July 2024. We are excited to be going to the world-famous Aintree…
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Members Only
Fully Booked
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24 Jul 24 - 28 Jul 24 at 2:30pm to 2:00pm
Youth Camp 2024 – Applications are now closed
Calling all children with a bleeding disorder and/or their siblings aged between 9 and 15…
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Hillsborough Castle & Gardens Running Festival, 5K & 10K
Registration Deadline: 18 July 2024 Take part in this amazing run that starts and finishes…
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Run Thorpe Park, 5K & 10K
Registration Deadline: 29 July 2024. Run 5k or 10k around the rides and rollercoasters inside the…
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Alton Towers Kids race plus 5k, 10k & Half Marathon
Registration Deadline: 6 November 2024 You can run, jog, or walk. This route is suitable…
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04 Dec 24 - 05 Dec 24 at 7:00pm
Santa in the City – London
Registration Deadline: 26 November 2024 You can run, jog, or walk. This route is suitable…
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