In addition to the normal benefits system the Government has established several trusts, funds and foundations that can offer support to people who have been infected by treatment with contaminated blood products and in some cases their families.
The Macfarlane Trust
Provides lump sums and fixed ongoing payment to people with bleeding disorders and HIV. The Trust is also in touch with many bereaved families of people who have died from AIDS following infection with HIV.
The Skipton Fund
Provides lump sums and fixed ongoing payments for people with Hepatitis C as the result of treatment with contaminated blood or blood products.
The Caxton Foundation
The Foundation is currently being set up to provide discressionary payments to people with Hepatitis C as the result of treatment with contaminated blood or blood products. It is not yet clear how the Foundation will operate.
The vCJD Trust
Nobody in the UK with a bleeding disorder has been diagnoised with vCJD. However, thousands of people with bleed disorders have been told that they are 'at risk' for public health purposes. If anyone in the UK with a bleeding disorder is diagnoised with vCJD they would be able to apply to the vCJD Trust for financial support.
The Haemophilia Society can also help directly.
The Tanner Fund
This is a small fund that can help with one off costs associated to living with a bleeding disorder.
