On the 17 April 2016 the World Federation of Hemophilia (WFH) joined the global bleeding disorders community in marking World Hemophilia Day. This year the WFH focused on bringing attention to a challenge that too many people in the bleeding disorder community face: lack of access to treatment and care.
On World Hemophilia Day we highlighted the need for treatment for all people with a bleeding disorder and how this goal will only be obtained with the help of the community at large. Treatment for All is the Vision of All but we can only achieve it together.
There is an enormous discrepancy in the level of care available to patients with a bleeding disorder around the world. While some are diagnosed very young, and have medical care throughout their life, most do not. Treatment exists for those with a bleeding disorder but without the correct care many patients still suffer debilitating pain, permanent joint damage, or death.
Ensuring that someone with a bleeding disorder is diagnosed early and is cared for is a shared responsibility. The WFH has been working toward the shared vision of Treatment for All for more than 50 years but the support of the entire community is much needed.
Created in 1996, the World Federation of Hemophilia (WFH) Humanitarian Aid Program channels donations of life-saving treatment products to people with bleeding disorders who need them all around the world. One of the WFH’s goals over the next three years to make more donated product available in developing countries, which will make humanitarian aid more predictable, and care more sustainable.
The recent expansion of the program will also make it possible for people with a bleeding disorder in the developing world to have access to treatment in emergency situations, acute bleeds, corrective surgeries, and prophylaxis for young children.
This program is one way the WFH is contributing to Treatment for All, but more must be done. We challenge and encourage the community to seek out how else they can contribute, through volunteering, advocacy work and financial assistance there are many ways to effect change in the community, locally, nationally, and globally.