Living with a bleeding disorder is never black and white. And it’s not all blood-red either. Life after diagnosis may start out hard, but we learn by doing, making mistakes, asking questions and surrounding ourselves with people who understand.
Then, slowly, it just becomes life again. Because a bleeding disorder shouldn’t define who we are, what we do or how we feel.
Through our community, we find the freedom, opportunity and fun in life after diagnosis.
What do you need help with today?
My child is newly diagnosed
Finding out that you or your child has a bleeding disorder can be a stressful experience, and we’re here to help you to make sense of it all.
Newly Diagnosed
Someone I know has a bleeding disorder
There are lots of different bleeding disorders. Find out more about the different types of bleeding disorders and the treatment options available.
Diagnosis & Treatment
I need help & support
All you need to know to keep fit and healthy with a bleeding disorder and the support and benefits available to you and your family.
Day-to-day Living
Latest news at the Haemophilia Society
18 Apr 24
Eight-year-old Jacob makes his fundraising walk an annual tradition
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18 Apr 24
Introducing the #TeamTHS London Marathon team (part two)
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15 Apr 24
Introducing the #TeamTHS London Marathon team (part one)
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11 Mar 24
Dental care – what’s your experience?
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Upcoming & recent events at the Haemophilia Society
Inquiry update meeting
We’re holding an online meeting on 2 May 2024 at 7pm to discuss the current…
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Newly Diagnosed Families Weekend 2024
Our newly diagnosed families weekend is a special event designed for families who have received…
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Great North Swim, 1 Mile
Registration Deadline: 29 May 2024. Distance: 1 Mile (equivalent to 64 lengths of a 25-meter pool)…
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Cheltenham Running Festival, 5K & 10K
Registration Deadline: 6 June 2024. Take this unique opportunity to run a chip-timed 5k or…
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06 Jul 24 at 6:00pm to 11:00pm
Haemophilia Society Diamond Gala Dinner 2024
Date: Saturday, 6 July 2024 Time: 6pm to 11pm Location: The Honourable Society of Lincoln’s…
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ASICS London 10K
Registration Deadline: 14 June 2024. This iconic event is back, bigger and better than ever….
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Run Aintree, 5K & 10K
Registration Deadline: 10 July 2024. We are excited to be going to the world-famous Aintree…
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Hillsborough Castle & Gardens Running Festival, 5K & 10K
Registration Deadline: 18 July 2024 Take part in this amazing run that starts and finishes…
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London Summer Walk
Get active & explore some of the Capital’s historic areas with a tour of the…
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Run Thorpe Park, 5K & 10K
Registration Deadline: 29 July 2024. Run 5k or 10k around the rides and rollercoasters inside the…
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Thames Bridges Trek
Join 2000 trekkers as we venture 25km across the Capital taking in unrivalled views of…
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Halloween Walk
Why not treat yourself to a hair-raising hike around some of the City’s scary streets…
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Alton Towers Kids race plus 5k, 10k & Half Marathon
Registration Deadline: 6 November 2024 You can run, jog, or walk. This route is suitable…
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Members Only
Save the Date
The Big Get-Together 2024
Join us for our Big Get-Together – our conference for everyone with a bleeding disorder…
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04 Dec 24 - 05 Dec 24 at 7:00pm
Santa in the City – London
Registration Deadline: 26 November 2024 You can run, jog, or walk. This route is suitable…
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Members Only
Save the Date
Newly Diagnosed Families Weekend 2025
Our Newly Diagnosed Families Weekend is a special event exclusively designed for families who have…
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London Marathon 2025
Marathon Day next year is Sunday 27 April 2025. The London Marathon is one of…
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Members Only
Save the Date
Youth Camp 2025
Calling all children with a bleeding disorder and/or their siblings aged between 9 and 15…
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