Membership of umbrella organisations

The Haemophilia Alliance is a UK wide partnership between patients with inherited bleeding disorders and health care professionals involved in the delivery of their care.

The EHC is an organisation of European haemophilia associations facilitating consultation, discussion and dissemination of information on important issues related to bleeding disorders.

The World Federation of Hemophilia (WFH) is an international not-for-profit organization dedicated to improving the lives of people with hemophilia and related bleeding disorders.

The Specialised Healthcare Alliance (SHCA) is a broad coalition of patient groups supported by a smaller number of corporate members. It was established in 2003 to campaign on behalf of people with conditions which require specialised medical care. These conditions tend to be rarer and both complex and expensive to treat. Examples are numerous but include certain cancers, cystic fibrosis, haemophilia, neurological conditions and a wide range of services for children. Accidents or complications of more common conditions can also trigger the need for specialised services such as burns, pain management and spinal injuries.

http://www.gig.org.uk/

National Voices is the new umbrella organisation established by and for the voluntary sector. It brings together all national voluntary organisations representing users of health and social care to give them a stronger voice in policy-making.

ACEVO is the Association of Chief Executives of Voluntary Organisations. They connect, develop and represent the third sector's leaders. They have over 2000 members and have been providing support and advice to them for 20 years.

The User Involvement in Voluntary Organisations Shared Learning Group (UIVOSLG) aims to encourage shared learning about user and/or carer involvement between medium and large voluntary sector organisations working within the UK.