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Home Browsealoud Donate Sign Up in your area Site Map Contact Us	Information About the Haemophilia Society Whos Who Trustees Bernard Manson - Chair Tim Metzgen David Fielding Jeremy Young Kate Khair Lynne Kelly Matt Gregory Staff and Office Volunteers Chris James - Chief Executive Dan Farthing - Policy and Communications Manager Georgie Robinson - Information and Support Alison Smith - Policy Officer Claire Treguer - Community and Events Officer Rachel Goodkin - Finance Officer Carmina Okuefuna – Community Fundraising Officer Nadine Brown - PR and Communications Intern Nigel Pegram - Benefits Information and Support Worker Susan Warren - Haemophilia Scotland Tom Bradley - Membership and Administration Officer Vicky Sutton-Smith - Children and Families Officer Our Strategy Media Centre Media Contact Press Releases 2011 Dec - Progress in gene therapy research in Haemophilia B 2011 Nov - Welsh Assembly - Launch of Cross Party Group 2011 Nov - Contaminated Blood Bill Latest 2011 Sept - Safety of Blood Supply is Paramount 2011 August - VICTIM TESTIMONIES OF NHS INFECTED BLOOD SCANDAL RELEASED 2011 July - PGD Testing 2011 April - World Haemophilia Day 17th April 2011 March - New Payments in Wales 2011 March - Scottish Hep C support announced 2011 March - New Hep C support in Northern Ireland 2011 Feb - RECALL Helixate Swabs 2011 Feb - New Hep C Support Announced in England 2011 Feb - UK Scientists - update on the development of a vCJD test 2011 Feb - Delayed 2nd Reading of the Contaminated Blood Bill 2011 Jan - Response to Government changes to Hep C support 2011 Dec - Get your Christmas Cards 2011 Dec - Read HQ online 2012 Jan - New Bursaries for WFH Congress Paris 2012 2012 Jan - Young Trustee Wanted Press Release Archive 2005 Press Releases 2005 December - Haemophilia Society calls for Public Inquiry 2005 November - Health Minister accused of reprehensible behaviour over Hepatitis C infection 2005 June 3rd - Renewed call for public inquiry into contaminated blood tragedy 2006 Press Releases 2006 November - Service of remembrance and thanksgiving 2006 September - Self-sufficiency report flaws 2006 August - International developments strengthen call for public inquiry 2006 January - Skipton Fund announcement 2006 April - Haemophilia Society calls for public inquiry 2006 March - Haemophilia Society asks Government for reassurance on treatment provision 2006 February - Haemophilia Society condemns Department of Health report 2007 Press Releases 2007 June - Former Secretary of State to give evidence at Archer Inquiry 2007 June - Haemophilia Society to give evidence to the Archer Inquiry 2007 May - Haemophilia Society calls on Government to release evidence to Archer Inquiry 2007 May - Scottish witnesses to give evidence at Archer Inquiry 2007 April - Haemophilia Society welcomes first day of Archer Inquiry 2007 March - Haemophilia Society welcomes Inquiry announcement 2007 March - Haemophilia Society calls for full disclosure in Archer Inquiry 2007 February - Archer Inquiry announced 2007 January - Haemophilia Society welcomes NICE guidelines but laments missed opportunity 2008 Press Releases 2008 October - Haemophilia Society condemns Government advisors call to deny at risk patients right to vCJD test 2008 July - Young people with bleeding disorders attend the David Beckham Football Academy 2008 May - Bereaved relatives fight for Hepatitis C justice on World Hepatitis Day 2009 Press Releases 2009 November - Haemophilia Society welcomes historic Contaminated Blood Bill 2009 August - Haemophilia Society backs Government calls for vCJD tests at autopsy 2009 August - The Haemophilia Society has nothing to offer but Blood Sweat and Tyres 2009 May - Haemophilia Society reacts to Government response to the Archer Report 2009 February - Haemophilia Society welcomes Archer Report 2009 February - Archer Inquiry Reports 2009 June - Haemophilia Society deeply dissappointed at lack of DoH public evidence to Archer Inquiry 2009 February - Haemophilia Society demands urgent action on vCJD Blood Transmission 2010 Press Releases 2010 Dec - End of Review announced by Minister 2010 Dec - Deputy Prime Minister responds to Question in House of Commons 2010 Dec - Gordon Clarke awarded MBE 2010 Dec - Letter in The Independent marking World AIDS Day 2010 December - Review Report Delayed 2010 Dec - The passing of Gareth Lewis 2010 Oct - Second Reading of Contaminated Blood Bill 22 October 2010 Oct - Historic Debate on Contaminated Blood secured 2010 Oct - Minister must not betray our community - Society reacts to HoC Debate 2010 Oct - Society responds to Department of Health White Paper 2010 July - Haemophilia Scotland make submission to Penrose Inquiry 2010 Sept - 1800th member on our Facebook Group 2010 June - Haemophilia Society lobbys Parliament in support of the Contaminated Blood Bill 2010 April - Gordon Brown challenged about contaminated blood live of Radio 4 2010 April - Haemophilia Society welcomes historic victory in court 2010 April - Government's Skipton Fund U-Turn is too little too late 2010 - Haemophilia Society names MPs blocking Contaminated Blood Bill 2010 - Haemophilia Society condemns rank hypocrisy of Government attitude to Contaminated Blood Bill 2010 March - Judical Review welcomed 2010 March - Haemophilia Society welcomes Judical Review day in court 2010 February - Massive turnout at lobby of parliament in support of the Contaminated Blood Bill 2010 January - Government must not block Contaminated Blood Bill Quick Briefing Forms Membership Members' Magazine Representing you 2010 White Paper - Liberating the NHS 2011 Feb - Submission to Lords Select Committee on HIV/AIDS 2011 June - Submission to Health Committee on Public Health Annual Accounts Governance Membership of umbrella organisations Find us Bleeding Disorders von Willebrands Disease Haemophilia Rarer Conditions and Platelet Disorders Platelet Disorders Hermansky-Pudlak Syndrome (HPS) Factor I (Fibrinogen) Deficiency Factor II Deficiency Factor V (proaccelerin) deficiency Combined Factor V and Factor VIII Deficiency Factor VII Deficiency Factor X Deficiency Factor XI deficiency Factor XIII Deficiency Acquired Haemophilia Being a Carrier Bleeding problems Finding out if you are a carrier Treatment How products are purchased by the NHS Regulation Types of clotting factor products Plasma Derived Concentrate Recombinant Care Dentistry Find a Haemophilia Centre National Service Specification for Haemophilia and other inherited bleeding disorders Infections CJD 'At risk' status changes CJD vCJD Information Event in April 2010 1. Chairman's Introduction 2. Introduction from the National CJD Surveillance Unit 3. vCJD Blood Transmissions and Blood Safety from NHS Blood and Transplant 4. Risk Assessment from the Department of Health 5. Notifications of those at increased risk from the CJD Incidents Panel 6. Patient Experience from a Haemophilia Society member 7. Lunchtime Discussion 8. The Evaluation of vCJD risk using the National Haemophilia Database from the UKHDCO 9. The Future 10. Group Discussion vCJD Survey Hepatitis Hepatitis C HIV XMRV Finance Insurance Life Insurance Travel Insurance Travel Caravans HIV Travel restrictions Glossary Latest news African Support Group Celebrates Gene Therapy Research - Haemophilia B Haemophilia Care Debate - Westminster Hall 8th February 2012 Tom's 20th Anniversary We are bidding to hold the WFH Congress Women Bleed Too	Support In your area Centres Alaw Unit (HC) Arthur Bloom Haemophilia Centre Birmingham Paediatric Haemophilia Centre Bournemouth and Poole Haemophilia Centre Bradford Haemophilia Centre Brighton Haemophilia Centre Bristol Adults and Childrens Haemophilia Centre Cambridge Haemophilia Centre Chichester Haemophilia Centre Children's Haematology Unit Colchester Haemophilia Centre Coventry Haemophilia Centre Cubik Solutions Test Centre Department Haematology Derby Haemophilia Centre Dundee Haemophilia Centre Exeter Haemophilia Centre Grampian Area Haemophilia Centre Great Ormond Street Haemophilia Centre Haemophilia and Thrombosis Centre Haemophilia Centre Hammersmith Hospital Haemophilia Centre Hull Haemophilia Centre Ipswich Haemophilia Centre James Paget University Hospital NHS Foundation Trust Katharine Dormandy Haemophilia Centre Kent & Canterbury Haemophilia Centre Lancaster Haemophilia Centre Leeds Haemophilia Centre Leeds Haemophilia Centre Leicester Haemophilia Centre, Haemostasis & Thrombosis Unit Lewisham Hospital Haemophilia Centre Lincoln County Hospital Haemophilia Centre Liverpool Paediatric Haemophilia Centre Manchester Haemophilia Comprehensive Care Centre, Adult's Manchester Haemophilia Comprehensive Care Centre, Children's Mayday Haemophilia Centre Medway Maritime Hospital Haemophilia Centre Milton Keynes Haemophilia Centre Newcastle Haemophilia Comprehensive Care Centre Newport Haemophilia Centre Norfolk and Norwich Haemophilia Centre North Devon Haemophilia Centre North Hampshire Haemophilia Centre North Staffordshire Haemophilia Centre Northern Ireland Haemophilia Centre Nottingham Haemophilia Comprehensive Care Centre Oxford Haemophilia & Thrombosis Centre Plymouth Haemophilia Centre Roald Dahl Paediatric Haematology Centre Royal London Haemophilia Centre Salisbury NHS Foundation Trust Sheffield Haemophilia and Thrombosis Centre, Adults Shrewsbury & Telford Hospital (SATH) Southampton Haemophilia Centre St George's Healthcare NHS Trust Haemophilia Centre Swansea Haemophilia Centre Taunton & Somerset Haemophilia Centre The Centre for Haemostasis and Thrombosis The Roald Dahl Haemostasis and Thrombosis Centre Liverpool Torbay Haemophilia Centre Truro Haemophilia Centre West Midlands Adult Comprehensive Care Haemophilia Centre West of Scotland Adult Haemophilia and Thrombosis Centre Worcester Haemophilia Centre Yorkhill Haemophilia Centre Events Add your own event East of England London African Mums - Raising children with bleeding disorders Contaminated Blood Bill Second Reading Welfare Reform Bill Second Reading North West Scotland Penrose Inquiry Oral Hearing UK wide Wales Groups Add your own group Haemophilia Scotland HQ Haemophilia Society HQ Irish Haemophilia Society Meeting people online Staying safe online Photos of your children Facebook Twitter Local Groups Bristol and South West Cornwall and Devon Pennywell Farm Visit Hull Kent Leicester and Rutland Lincoln and District North West Northampton Northern Ireland Oxford Southern Yorkshire Buddy Award Apply for a Buddy Award Buddy Award Launch International World Haemophilia Day World Haemophilia Day 2010 Contaminated Blood Product Support Financial Support News Letter to members 20th Jan 2011 New Hep C Support Announced New Hep C Support Announced We will not forget them Haemophilia Scotland About us Haemophilia Scotland Management Committee Local Groups in Scotland East of Scotland Grampian Highlands and Islands Tayside West of Scotland Our work Follow the Oral Hearings Scottish Contaminated Blood Campaign New Support Package The Penrose Inquiry Stay in touch Haemophilia Scotland Newsletters Inhibitors About Acquired Haemophilia Diagnosing Acquired Haemophilia How many people have Acquired Haemophilia Living with Acquired Haemophilia Personal Stories Treatment options for Acquired Haemophilia What is Acquired Haemophilia Who gets Acquired Haemophilia About Inhibitors Children and inhibitors Diagnosing an inhibitor How many people have an inhibitor Living with an inhibitor Personal Stories Tips for living with an inhibitor Surgery with an inhibitor Treatment options with an inhibitor Immune Tolerance Therapy Plasma Derived Factor Recombinant Factor What is an inhibitor Who gets an inhibitor About the Group and our events About the Inhibitor Group Previous Events Stratford upon Avon 2009 Event Report 2009 Photos from Stratford upon Avon 2009 Upcoming Events For Healthcare Professionals Frequently Asked Questions Can we still go on holiday Inhibitor Group FAQ Inhibitor Group Discussion Forum Inhibitor Group Discussion Forum International website for people affected by inhibitors launched Event Reports Haemophilia Society Conference and AGM 2011 Clydebank Conference and AGM Women Information for teenagers Bleeding Disorders that can affect women Checklist Diagnosis and Testing
Get Involved Contaminated Blood Campaign The Disaster Campaign in Parliament All Party Parliamentary Group on Haemophilia About the All Party Group on Haemophilia Briefing Papers The Impact Policy Failures Treatment Financial Settlements Contaminated Blood Bill Early Day Motions Key Meetings Ministerial Meeting - 29 June 2011 Ministerial Meeting - 20 July 2010 Parliamentary debates and statements COMMONS - Ministerial Statement on Review - 14 Oct 2010 COMMONS - Ministerial Statement on Review - 21 Dec 2010 COMMONS Contaminated Blood Disaster Backbench Debate 14th October 2010 Ministerial Statement from Anne Milton Terms of Reference for the Review The Motion the MPs debated LORDS Contaminated Blood Products 2nd June 2010 WALES - Welsh Lib Dem Debate - 9th Feb 2011 Second Reading Debate Write to your MP Written Questions Questions in the House of Commons Paul Goggins - Will the Minister make a statement - 3rd June 2010 Eddie O'Hara - Cost of implementing the Archer Report - 29th March 2010 Questions in the House of Lords Lord Morris of Manchester - Cost of implementing the Archer Report - 29th March 2010 Questions in the Scottish Parliament John Farqhuar Munro MSP (LD) - Is the Scottish Government talking to Wesminter about a settlement? - 24 August 2010 Tavish Scott MSP (LD) - What consideration has been given to the Archer recommendations on compensation? - 1 December 2010 Tavish Scott MSP (LD) - Will there be a statement following the preliminary report of the Penrose Inquiry? - 1 December 2009 Gil Paterson MSP (SNP) - Will additional deaths be included in the Penrose Inquiry? - 13 November 2009 Mary Scanlon MSP (Con) - When will the Penrose Inquiry report? - 13 November 2009 Campaign Inquiries The Archer Inquiry 2007 to 2009 The Penrose Inquiry 2009 Background to the Inquiry Engaging with the Penrose Inquiry First Submission Medical Records Preliminary Report Campaign in Court Campaign Media Newspaper and Print Television and film The Campaign Campaign Objectives Campaign Meetings Past Meetings 7th September 2010 - Consultation after meeting the Minister Patient Opinion Vacancies Younger Trustee Wanted Volunteering with the Haemophilia Society Internships Local Groups Project Committees The Women's Board	Funding it all How to Donate Sponsored Events Cycling Events The next ride Photos and previous rides Before the ride from Land s End to John O Groats BST 2010 - The South Downs Way 100 Miles Ride After the ride from Land s End to John O Groats Photo of the 2009 BST Team Overseas Challenge Events About the London to Paris Cycle Ride Photos of our London to Paris Cyclists 2009 About the Trek in China About the Trek in Costa Rica About the Trek in South Africa Sponsor our sailors Sponsor our Sky Jumpers Sponsor our trekkers Running Events Bupa Great Runs About the Bupa Great Runs Photos of the 2009 Great North Run Great Midlands Fun Run The Adidas Women s 5K Challenge About the Adidas Women's 5K Challenge Photos of the 2009 Adidas Women’s 5K Challenge The British 10K London Run About the British 10K London Run Photos of the 2009 London British 10K Runners Photos of the 2010 London British 10K Runners The Virgin London Marathon Photos of the 2010 London Marathon Sponsor our runners Swimming Events Great Swims UK Challenge Events Whitewater Rafting Walking and Trekking Three Peaks Challenge Bayer 2010 - Before the Challenge Bayer 2010 - After the Challenge Local Fundraising Setting up your Own Event Forthcoming Local Events Horsing around for Haemophilia Local Events 2009 Car Boot Sale 2009 Local Concert and Raffle 2009 Local Walk 2009 World Hemophilia Day 2011 In Memoriam Gift Free Ways to help When you buy and sell online When you buy for your children When you recycle printer cartridges and mobile phones When you search online When you send flowers When you shop online Merchandise Christmas Cards	Conference Register What's on