The European Haemophilia Consortium (EHC) is an organisation that brings together the national haemophilia patient associations from 44 countries in Europe, including all 28 EU member states.
The EHC’s mission is to improve the quality of life of people with haemophilia in Europe. It works to reduce the burden of the condition on both individuals and society, facilitating consultation, discussion and dissemination of information on important issues related to bleeding disorders. To achieve its aim, the EHC engages with policy makers, the medical profession, people with bleeding disorders and the public with a view to provide expertise and knowledge on how to live with these conditions.
The Haemophilia Society works closely with the EHC to ensure we are supporting and representing members of the Society and our colleagues across Europe. We attend and participate in training events to ensure we have a full understanding of the complex processes often used by governments when assessing access and service provision for haemophilia and other bleeding disorders; we share good practice with other national member organisations (NMOs), and occasionally call on the expertise of the EHC staff and Board to help us understand and resolve complex advocacy issues.
We hosted the 2014 EHC conference in Belfast where we welcomed members from across Europe. The conference was a great success: attendees were able to meet, share, learn and reconnect with friends old and new from across the bleeding disorder community, ensuring we work together for the benefit of our community Europe-wide.
You can view the latest newsletter from the European Haemophilia Consortium here.